Identifying the Tuskegee Syphilis Study: Implications of Results from Recall and Recognition Questions

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dc.contributor.author Katz, Ralph V en_US
dc.contributor.author Jean-Charles, Germain en_US
dc.contributor.author Green, B Lee en_US
dc.contributor.author Kressin, Nancy R en_US
dc.contributor.author Claudio, Cristina en_US
dc.contributor.author Wang, MinQi en_US
dc.contributor.author Russell, Stefanie L en_US
dc.contributor.author Outlaw, Jason en_US
dc.date.accessioned 2012-01-09T20:53:56Z
dc.date.available 2012-01-09T20:53:56Z
dc.date.copyright 2009 en_US
dc.date.issued 2009-12-16 en_US
dc.identifier.citation Katz, Ralph V, Germain Jean-Charles, B Lee Green, Nancy R Kressin, Cristina Claudio, MinQi Wang, Stefanie L Russell, Jason Outlaw. "Identifying the Tuskegee Syphilis Study: implications of results from recall and recognition questions" BMC Public Health 9:468. (2009) en_US
dc.identifier.issn 1471-2458 en_US
dc.identifier.uri http://hdl.handle.net/2144/2906
dc.description.abstract BACKGROUND. This analysis assessed whether Blacks, Whites and Puerto-Rican (PR) Hispanics differed in their ability to identify the Tuskegee Syphilis Study (TSS) via open-ended questions following lead-in recognition and recall questions. METHODS. The Tuskegee Legacy Project (TLP) Questionnaire was administered via a Random-Digit Dial (RDD) telephone survey to a stratified random sample of Black, White and PR Hispanic adults in three U.S. cities. RESULTS. The TLP Questionnaire was administered to 1,162 adults (356 African-Americans, 313 PR Hispanics, and 493 non-Hispanic Whites) in San Juan, PR, Baltimore, MD and New York City, NY. Recall question data revealed: 1) that 89% or more of Blacks, Whites, and PR Hispanics were not able to name or definitely identify the Tuskegee Syphilis Study by giving study attributes; and, 2) that Blacks were the most likely to provide an open-ended answer that identified the Tuskegee Syphilis Study as compared to Whites and PR Hispanics (11.5% vs 6.3% vs 2.9%, respectively) (p ≤ 0.002). Even when probed by a recognition question, only a minority of each racial/ethnic group (37.1%, 26.9%, and 8.6%, for Blacks, Whites and PR Hispanics, respectively) was able to clearly identify the TSS (p < 0.001). CONCLUSIONS. The two major implications of these findings for health disparity researchers are 1) that it is unlikely that detailed knowledge of the Tuskegee Syphilis Study has any current widespread influence on the willingness of minorities to participate in biomedical research, and 2) that caution should be applied before assuming that what community leaders 'know and are aware of' is equally 'well known' within their community constituencies. en_US
dc.description.sponsorship National Institute of Dental and Craniofacial Research (U54 DE 14257, T32 DE DE007255) en_US
dc.language.iso en en_US
dc.publisher BioMed Central en_US
dc.rights Copyright 2009 Katz et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. en_US
dc.rights.uri http://creativecommons.org/licenses/by/2.0 en_US
dc.title Identifying the Tuskegee Syphilis Study: Implications of Results from Recall and Recognition Questions en_US
dc.type article en_US
dc.identifier.doi 10.1186/1471-2458-9-468 en_US
dc.identifier.pubmedid 20015361 en_US
dc.identifier.pmcid 2801681 en_US

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