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dc.contributor.authorHall, Sarah A.en_US
dc.contributor.authorRossetti, Zachen_US
dc.date.accessioned2019-02-12T19:11:25Z
dc.date.available2019-02-12T19:11:25Z
dc.date.issued2018-05-01
dc.identifierhttp://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000430108300009&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=6e74115fe3da270499c3d65c9b17d654
dc.identifier.citationSarah A Hall, Zach Rossetti. 2018. "The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities." JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, Volume 31, Issue 3, pp. 423 - 434 (12). https://doi.org/10.1111/jar.12421
dc.identifier.issn1360-2322
dc.identifier.issn1468-3148
dc.identifier.urihttps://hdl.handle.net/2144/33321
dc.description.abstractBACKGROUND: Siblings of people with intellectual and developmental disabilities (IDD) often assume key roles to support their brothers and sisters. For people with more significant support needs, siblings may undertake additional roles and responsibilities throughout their lives. The purpose of the present study was to identify and describe the roles of adult siblings who have a brother or sister with severe IDD. METHOD: Seventy‐nine adult siblings from 19 to 72 years of age completed an online survey with open‐ended questions about the roles they play in their relationships with their brother or sister. RESULTS: Thematic analysis resulted in identification of several roles including caregiver, friend (social partner), advocate, legal representative, sibling (teacher/role model), leisure planner and informal service coordinator. CONCLUSION: Siblings assume key roles in the lives of people with IDD and need support from family and professionals to perform these roles.en_US
dc.format.extentp. 423-434en_US
dc.languageEnglish
dc.language.isoen_US
dc.publisherWileyen_US
dc.relation.ispartofJournal of Applied Research in Intellectual Disabilities
dc.subjectSocial sciencesen_US
dc.subjectScience & technologyen_US
dc.subjectLife sciences & biomedicineen_US
dc.subjectPsychology, educationalen_US
dc.subjectRehabilitationen_US
dc.subjectPsychologyen_US
dc.subjectDevelopmental disabilitiesen_US
dc.subjectIntellectual disabilitiesen_US
dc.subjectSibling rolesen_US
dc.subjectMultiple disabilitiesen_US
dc.subjectSupport needsen_US
dc.subjectChildrenen_US
dc.subjectFutureen_US
dc.subjectIndividualsen_US
dc.subjectAutismen_US
dc.subjectInvolvementen_US
dc.subjectAdolescentsen_US
dc.subjectPredictorsen_US
dc.subjectAgeden_US
dc.subjectCaregiversen_US
dc.subjectFemaleen_US
dc.subjectHumansen_US
dc.subjectYoung adulten_US
dc.subjectAdulten_US
dc.subjectMiddle ageden_US
dc.subjectPsychologyen_US
dc.subjectCognitive scienceen_US
dc.subjectSocial worken_US
dc.subjectRehabilitationen_US
dc.titleThe roles of adult siblings in the lives of people with severe intellectual and developmental disabilitiesen_US
dc.typeArticleen_US
dc.description.versionAccepted manuscripten_US
dc.identifier.doi10.1111/jar.12421
pubs.elements-sourceweb-of-scienceen_US
pubs.notesEmbargo: Not knownen_US
pubs.organisational-groupBoston Universityen_US
pubs.organisational-groupBoston University, Wheelock College of Education & Human Developmenten_US
pubs.publication-statusPublisheden_US
dc.identifier.orcid0000-0002-0616-7982 (Rossetti, Zach)


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