Working through lymphedema: exploring women's functional well-being and quality of life

Abstract

Background: In order to best treat breast cancer related lymphedema it is important to realize that it is a progressive, and for some, a lifelong condition requiring surveillance. Breast cancer patients are educated to be aware of the signs of lymphedema, as are physicians. This is critical to capturing those patients most in need of treatment since there are less options and more comorbidities associated with more severe swelling. Impaired shoulder usage, loss of range of motion and discomfort associated with the swelling of lymphedema can severely impact a patient’s lifestyle reducing their ability to work, be self sufficient and lowering their quality of life. Since 20% or more of patient’s treated for breast cancer will go on to deal with lymphedema in the long term or transiently it is necessary to understand who is most affected and at what level of swelling it is necessary to treat this condition. Methods: As a part of the lymphedema screening protocol at Massachusetts General Hospital we were able to analyze data on 138 women with newly diagnosed breast cancer. They were followed for at least 18 months and measured at least 3 times using the perometer, which records their arm volume and compares it to baseline. At the same time they were asked to fill out the LEFT-BC questionnaire to assess their quality of life and answer relevant questions relating to arm usage. [TRUNCATED]